tag:blogger.com,1999:blog-43946490947500088912024-02-19T08:39:56.543-08:00Julie Jurgens-Shimek BlogJulie Jurgens-Shimek is a Freelance Writer, Published Author, Public Speaker, Radio and TV Personality. She is the mother of a nine year old son who is Autistic. Politics, Special Education, and Accountability are her focus.Julie Jurgens-Shimekhttp://www.blogger.com/profile/16079760792510831834noreply@blogger.comBlogger24125tag:blogger.com,1999:blog-4394649094750008891.post-24102550885148047712012-04-02T08:45:00.001-07:002012-04-02T08:45:50.362-07:00Autism Awareness Month<h2>Autism Awareness Month 2012</h2><br />
I am asked at every interview, every book signing, each speaking engagement my thoughts on what causes autism. I am very careful when answering this question. People are looking for an answer that is theory not fact at this time where autism is concerned. People are desperate for something to grasp on to for guidance, this statement applies to people who are connected to autism and people wishing to start a family and have fears. It is a slippery slope when you are given a platform to inform people. Great responsibility comes with this, I take it very serious. <br />
<br />
I have read so many findings and facts, spoke to Dr.'s, Scientist, the medical community. You name it, I have focused on it to gain information and knowledge.<br />
<br />
Here is my classic "go to" when this question on the cause of autism is presented to me. Take it for what it is. It is "our" story "watching autism" happen to our son.<br />
<br />
I was 32 years old when Michael was born. He was born 3.5 weeks early. He was healthy and weighed in at 6.9 pounds Oddly, my first son, Ryan who was 12 when Michael was born arrived 3 weeks past his due date weighing in at 8.9 pounds. Both pregnancy's that I have had were uneventful. Both boys delivered via c-section.<br />
<br />
Michael was a fussy baby, a bit of colic the Dr. said. <br />
<br />
Michael received all of his scheduled immunizations. Ryan also did. Michael like Ryan would receive his scheduled immunization and run a low grade temp, have the "hot bump" at the inoculation site, be a bit fussy for about 24 hours. I would give them each baby Tylenol per instructions from the Dr.<br />
<br />
This is the scheduled immunization list for each of my son's at "around" the same time. The "age given" scheduled had changed some during the time between each of the boys birth. The vaccinations and the number given had also <strong><u>drastically changed in that 12 years.</u></strong><br />
<br />
At 6 months Ryan received a DTP vaccination- his next vaccination was at 15 months of age- a DTP and a MMR.<br />
<br />
For Michael he received at 6 months a - DPaP, Hib, PVC<br />
At 12 months, he received a HepB3, DTaPSS, Hib, PCV, MMR<br />
<br />
I remember Michael's 12 month immunizations like it was yesterday. He was wearing a navy blue jogging suit, he was healthy and happy, it was like any other Dr. visit. He had his scheduled vaccinations, and a check up, height and weight was taken and the usual Dr. look over. All was well, until about 2 hours later.<br />
<br />
Michael began to run a high fever, not the usual low grade temp as he had in the past. I got Tylenol in him, however the fever continued to climb. He would not eat not drink. He screamed for several hours. I called the Dr. and spoke to the nurse who said to just keep giving Tylenol, just keep him in his a diaper with no other clothes and hold him as little as possible as my body heat would transfer and make him even warmer. After several hours, the Tylenol kicked in and Michael slept. The next morning, he was lethargic, and ran a low grade temp with Tylenol. I called the Dr's. office to update them as they requested the last conversation we had the day before. They seemed pleased that the high fever had ended and we were just dealing with a low grade temp at this point. They seemed unconcerned that I was mentioning Michael was still somewhat lethargic. His nurse said that all of the crying, the fever were the cause of this. <br />
<br />
Later in the day, Michael was hungry. I placed him in his high chair, gave him his juice in his sippy cup as this was how he took fluids for sometime. He stared at the sippy cup and had no coordination on how to pick it up and use it. He did not babble and coo, as he always did. He looked at the cereal I had placed on his high chair tray and could not pick it up. It was as if he did not know what to do with it. He just sat in the chair, staring out into space. Something was wrong. He would not talk. He would not say "mama" "dadda" "bye, bye" --he would not say anything. It was as if his voice stopped working. I could see the change right before my eyes. I called the Dr.'s office and said I was bringing him in and wanted the Dr. to see him ASAP. <br />
<br />
We went to clinic, the Dr. checked him over and said he was fine, he was behaving no different that many babies after a fever and a "long night" of upset and crying. He said he was just tired and I should help him eat and drink and put him down for a nap. I felt like I was politely being told to settle down, quit being so over protective. I left the Dr.'s office feeling foolish and bad for wasting their time and messing up the other patients appointment time.<br />
<br />
My husband, our now 13 year old son ( his age at that time ) and myself watched Michael leave us, over a 12-24 hour period. Michael has never been the same. I did not hear him say "mama" for almost 4 years after that day. After years of intense work, he was able to say it again. Not everyone can understand what he is saying when his calls for his "mama" but his "mama" knows. <br />
<br />
**Also noted, Mike contracted the RSV virus ( most kids do ) and was in the hospital for about 24 hours for dehydration. Unbeknown to us, he was given a flu shot, with Thimerosal. I discovered this while researching his medical records several years ago. This shot was given after this 12 months shots. Mike was 17 months old at this time. We were told after this discovery that ALL patients were given the flu shot as the strain at that time was significant and it was the hospital policy for all patients and staff to have one. This was their reason for not consulting us, not getting approval from us when it was administered. We were not present in the room when it was given. We had NO knowledge of this shot, only after I discovered it in his medical records.<br />
<br />
***After much research and discussion with Dr.'s Michael has had no further immunizations after the 12 month schedule but the flu shot we were unaware was given at 17 months of age. We weighed the pros and cons heavily. It was not easy for us to make this decision. We did however believe that the risk was one we would have to take. Mike had so little of himself left, IF it was in fact an issue with the vaccications, we would lose what little was left of him. We fully understand the risks. It is not easy to except that your child could become seriously ill or die from this decision. We think of that everyday. <br />
<br />
I have more to add to this post but other duties call. Michael is home on spring break from school. He will be 11 years old in June. He and I have plans for the day. We are going to draw, color, maybe go outside if the suns shines for us today. Michael needs 24/7 supervision, he will never live independently, he is what I call "classic autistic", he relies on his "mama" for each step the day brings him. Michael will always be autistic. He has worked so hard to gain the skills he has. Fantastic people have contributed to his growth. For that we are thankful. I always tell people that for each milestone that he achieves, he works 1,000 times harder then the average child to meet it. Some he will reach with hard work, and many he will never be able to meet due to his autism. <br />
<br />
The CDC has just announced their current data on autism numbers in America. 1 in 88 children are now diagnosed with autism. There are no concrete answers on the cause of autism at this time. <br />
<br />
Peace`<br />
<br />
JJJS<br />
<br />
<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjpzBU2IozFTszj6-LUFka6uwlMP_i8xsATzl8cvgD6InHBSBr2v-7bc0gUxuNLZJyVqVfbi6RXYFDSf18Eq5DbX9WfkLoj5OBnbb-QDQ7h72jvFLgUejyoDlqDMPK03krff4uxG5C6xzp5/s1600/4letter%2520word%2520book%2520front+book.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjpzBU2IozFTszj6-LUFka6uwlMP_i8xsATzl8cvgD6InHBSBr2v-7bc0gUxuNLZJyVqVfbi6RXYFDSf18Eq5DbX9WfkLoj5OBnbb-QDQ7h72jvFLgUejyoDlqDMPK03krff4uxG5C6xzp5/s1600/4letter%2520word%2520book%2520front+book.jpg" /></a></div> Julie Jurgens-Shimekhttp://www.blogger.com/profile/16079760792510831834noreply@blogger.com0tag:blogger.com,1999:blog-4394649094750008891.post-8670507872344138682011-09-18T11:17:00.000-07:002011-09-18T11:26:08.620-07:00I Should Have Done This Post Years Ago..........How to Get PublishedThe title of this blog entry will speak for itself.<br />
<br />
Over the years I have received hundreds of emails, letters, ( for those investigative types who dug deep to locate me ) phone calls, ( again, those that did their research, one whom knew what county I lived in actually called local law enforcement in search of my phone number, that they did <em>not</em> give, however kindly took a phone number and gave it to me ) to handing me manuscripts, and business cards at book signing or lectures. This blog is for you!<br />
<br />
The question that I am so often asked by people is "how do I get published"? Whether it be a story for an article, newspaper, magazine or book. For some reason many believe if I can connect with someone who has accomplished these goals, they are one step closer to their goal. Sadly, I will respond that is not the case.<br />
<br />
What I can offer you is a bit of wisdom and advice...I am happy to support your goals and effort.<br />
<br />
I feel that it is my responsibility to first give you a bit of my background in the publishing world. My professional education is in the medical field. I worked professionally for years in this field. After my son Michael was born I did not go back to work immediately. I had planned to go back always as I loved my job. Michael's Autism dictates our lives and schedules. Shift work, long hours and the stress of the job were to much for our family to survive. We were struggling to live our lives when I was home full time. My absence fifty plus hours a week would have been detrimental to our lives. It took me a few years to except that all of my hard work to get to my goals professionally, would never return.<br />
<br />
I wrote extensively when Michael was younger. I read an article from a top magazine looking for stories on Autism. I decided I would write from my heart and submit it. About three months later, I received a call from an editor about my article. We talked like old girlfriends on the phone. She had an Autistic nephew. What started out as a conversation about the article rapidly became a Q & A about Autism and families. We ended our "chat" with her stating that the article was fantastic, but after our conversation she really felt there was a "book" here. She was going to network a bit with a few editors she knew in the publishing industry and get back to me. Within twenty four hours, I was conversing with a book editor in Chicago. She had two girlfriends with children recently diagnosed with Autism. She wanted to see more of work, ASAP. I was a smooth talker, and said I would think about it, get back to her. After a frantic phone call to my mother, I brought her up to speed on what my last twenty four hours had been like. I had told no one before this is what I had been doing, not even my husband.<br />
<br />
To fast forward, my first book was published six months later. My third is currently in editing and should be on shelves this March or April. I do some freelance work, it is minimal by choice. For me it is to competitive of a market, to stringent of a timeline, and if your work is good, they want more at a fast speed. Opportunities can blossom ( and did ) and all of a sudden I had people expecting work from me that I struggled to deliver. I remind publishers, editors and agents all the time I live the life they want me to write about. Read my work, it is self explanatory why I have days that I am productive and days I can get nothing done.<br />
<br />
Back to some advice. First and foremost WRITE! Write at least everyday, even if is just a paragraph. Go by the golden rule of writing "Write What You Know"!! At least it will be passionate and honest. The players in this industry can spot a fake at twenty paces. Even if you work needs tuning, it is what you know.<br />
<br />
Be prepared for rejection. This is not a profession for those with a thin skin. For every one success, plan for a hundred plus rejection. I have learned and was advised to not ever take any of this personally. It takes a lot to make me fuss about this, I just do not have the time. I also believe that things happen for a reason and what is meant to be, is. I have a publicist, she hears the rejections, I do not. This may be the reason I do not let it bother me. I never hear the rejection.<br />
<br />
Start a blog! It is easy to do, research online and find the one that fits you best. Blog and do it often. I will confess, I do not blog that often, I am working on changing that. There are comment sections on blogs that you can have open to public to leave a response. I do not have my comments section open for the public. Not as I anticipate negative comments. I anticipate people searching for information, asking me questions. I have email linked to my website, people can contact me for those that way. <br />
<br />
Start submitting articles to newspapers and magazines. Don't hang by the phone waiting to hear, if they contact you consider it a plus. Research and see if they except unsolicited articles, some do, some do not.<br />
<br />
Find yourself an agent. A Literary Agent. I state this as if it is an easy task. It is not, be prepared for many a rejection. If you can, get an Editor ( private is fine for now ) and a Publicist if possible. If you write saucy articles or books, get an Attorney. I have one on retainer at all times. I write about politics and call it like I see it. All three of my books held a level of liability to the education system ( liability on their part, not mine ). I have all of the above listed. They are the main reason I am successful at what I do. <br />
<br />
Many cities and campus's have writing groups. It is a great way to network and hone your craft. Take a writing class if that interests you. <br />
<br />
As I got successful in this profession, I became caught up in the fact that I did not hold a degree in the writing field. I considered going back to college to obtain a diploma. After much reflection and discussion with my colleagues, I reconsidered. I would be doing it for the framed diploma to hang in my den. My days of pleasing people ended some time ago. I know far to many people who attended Ivy League Universities and hold impressive degrees, that I am amazed can dress themselves each day. They are no more interesting in a conversation to me then another. I am not against college, my oldest is in his third year. It just is not something I am driving for to be successful. If I had all the time to give, I would probably go back. I have not the time to give in my life right now.<br />
<br />
I have had the grand privilege to meet and subsequently well enough over the years to call my friends, several big names in the writing world. They have been a wonderful source of support and guidance for me. Did you know that Steven King never uses punctuation, capitalizes nothing, but the title of his manuscript? He uses no paragraphs. He never spell checks. Why you ask? It is not his job. His job is to write and discuss. His editor does all of this for him. First, it is her job. Second, how is he suppose to know all the "correct" parts of proper writing. His job is to be creative and write. He does his job and allows someone else to do theirs.<br />
<br />
I have made many a mistake in my writings, I own them, Each and everyone of them. I have an editor who handles my writings that will go to a freelance project or for a manuscript for a book. Outside of that, you take what I give. It is mine you see. I am not a perfect writer. I am cautious of anyone who believe anything they do is perfect and error free. Let's face it, I am not trying to split the atom here. I write what I know, I tell a story or have a conversation with someone, in writing form.<br />
<br />
People so often think that writers are these fascinating people. I know a few who I believe would fall into this category. People think our lives are so jet set and exciting. I am here to tell you different. Yes, I have days I am on a T.V.- in a studio rubbing elbows with high profile people, I meet Senators and people who are members of Congress. I have been on major news networks. I am on talk radio often ( by the way- is my favorite place for a discussion---I need my own show or as a co-host--someone help me make that happen ) and meet power players in the entertainment industry. I have photo shots for my books, hair, make up and wardrobe. I have reporters calling me for quotes on our Governments health care debate, educational cuts, taxes, you name it. <br />
<br />
I must be honest and tell you, all of the above is the smallest percentage of my life. When I am promoting a book or a cause I am passionate about then yes, that is my life. Otherwise, I am a mother to two sons, one is twenty two years old away at college. My other son, is ten years old and Autistic. I am a wife, mother, daughter, sister-in-law, aunt and a dear friend to many. That is my life. I write to better the lives of all of those listed above. Some where in all of that is me. Once in a great while, I am allowed to be me. When I can, I write. I am forthright and very honest. I find that because of these qualities, people are interested in what I have to say.<br />
<br />
With the upcoming elections politics is back on the table for me. I am starting a second blog in October. A political blog. I am excited! I will report more as it is closer to going live. It is currently in the design mode. I know little more then that at this time. I am not a solo projects. I have great people that I work with, I let them do their job, I do mine. <br />
<br />
I hope this helps to answer some of your questions. Please let me know if I can provide more. A quick shout out to Robbin from Ontario, Canada. My best to you as you reach for your writing goals. A big thank you for all of your work. Robbin works as a Instructor Therapist. She provides services to families with children diagnosed with autism that include: ABA, verbal behaviour, DTT, DIRFloortime Play Therapy, NET and sensory diets. She also provides parent training to assist and train parents with behaviour management techniques. She is leaping into the pool as a Freelance Writer to help people. Feel free Robbin to send me something to read. I would be glad to help a fellow writer. Let me know if you get published. I will be the first to purchase your work. We help one another. <br />
<br />
My best to each of you. I am off to roast a chicken for dinner, snuggle with my man and cheer the Vikings on! <br />
<br />
J.Julie Jurgens-Shimekhttp://www.blogger.com/profile/16079760792510831834noreply@blogger.com0tag:blogger.com,1999:blog-4394649094750008891.post-84634285867110718162011-09-11T09:57:00.000-07:002011-09-11T09:57:58.916-07:009/11-- 10 years later<span style="font-family: Times;">Today is the 10th anniversary of 9/11. We are surrounded by the media coverage of that tragic day. Future terrorists attacks remain ever present, heightened by the anniversary date. </span><br />
<br />
<span style="font-family: Times;">I always find a personal story very interesting. I recall my grandmother, telling of the day Pearl Harbor was attacked. My mother's story, sitting in her classroom when the announcement that President Kennedy had been assassinated. I recall, in a elementary classroom, a teacher, crying as she entered our classroom to announce that President Reagan had been shot ( actually, she blurted out in her tears that he had been assassinated and was killed ). I recall watching the Space shuttle Challenger explode, while standing in my high school commons area. All of us remember a tragic event that has altered our lives ever remaining in our memory, never to leave. </span><br />
<br />
<span style="font-family: Times;">September 11, 2001 is no different.</span><br />
<br />
<span style="font-family: Times;">It was a beautiful fall day here in Minnesota. Ryan our oldest son was twelve, just starting the seventh grade. Michael was eight weeks old. Jim had left for work early that morning. I had a window of time to drive to town, a twenty minute jaunt, get my shopping done and arrive home before Michael would need to be fed again. My mother-in-law had offered to watch Michael while I shopped. As I was driving, there was the announcement on the radio that there had been a plane crash in New York. Little more was said at that time. By the time I arrived at my mother-in-laws, images of Word Trade Tower One were on CNN. At that time, the report was that it was a small single engine plane. Keeping on schedule I left. I continued on my quest to shop and do my best to be back to take Michael home in two hours. </span><br />
<br />
<span style="font-family: Times;">Much happened while I shopped. World Trade Tower Two was hit and had collapsed. I arrived to pick Michael up, in my short time away, our country was under attack. The Pentagon had been hit. As a public we were still unaware of the tragic ending of Flight 93 in Pennsylvania. I did not stay at my mother-in-laws house but for a few minutes. I watched CNN standing in her living room and just wanted to go home. Quickly, I loaded Michael up and tuned into the radio. Once home, I got Michael into his crib and unloaded my shopping bags. I put what needed to be refrigerated away, got Michael a bottle, changed him, poured a large cup of coffee and settled into a chair in the living room, Michael cradled in my arms. Michael now fed, I watched in horror the images and reporting on CNN. </span><br />
<br />
<span style="font-family: Times;">Jim called me from work. He had no television coverage where he was at, he wanted me to describe to him what I was seeing. It was indescribable, I told him. I asked him if he was coming home? He said no, he needed to stay at work, he would be home this evening. I sat there, feeling all alone. After some reflection, I realized thousands were not ever coming home. It is interesting how we immediately take a situation, and make it about our self first. I was thirty-two years old. Older and a bit more wiser, I am much more focused on a life where in almost every situation, it is not about me. I am a better person for that, I try to reflect that each and everyday, with each situation and person I meet.</span><br />
<br />
<span style="font-family: Times;">I add this next thought, in reflection of something I have struggled to do. I have a cousin ( many of them to be accurate) whom since 9/11 has married. I have only met his wife a few times. I have a wonderful picture of her taken in 2000, dancing at my wedding, with a smile that is contagious. Her brother was one of the many heroes of Flight 93, that crashed in Shanksville, PA. Names are not something I have any right to share . I have not sent a letter of condolence, yet. Unsure always of what I would say, if it was appropriate to say anything, or that to much time has passed to put pen to paper. I have taken the cowards way out and done nothing at all. I realize today, I shall find the words and pen that letter. </span><br />
<br />
<span style="font-family: Times;">Peace`</span><br />
<span style="font-family: Times;">J.</span>Julie Jurgens-Shimekhttp://www.blogger.com/profile/16079760792510831834noreply@blogger.com0tag:blogger.com,1999:blog-4394649094750008891.post-87761171566214105982011-08-14T16:42:00.000-07:002011-08-14T16:42:38.833-07:00My View on PoliticsAugust 14, 2011<br />
<br />
I was recently asked a question on my viewpoints on candidates currently running for the office ( actually to clarify, my viewpoints on a recent televised debate ) of the President of the United States.<br />
<br />
For me, it is far to early in the process to make any solid stance at this time. What I offer below are my standings "in" politics.<br />
<br />
** Please note at the beginning, I have included a brief answer to the author of the question, my reason for a tardy response. <br />
<br />
--<br />
I apologize for my lack of a timely response. Evenings are hectic here getting Mike settled into his evening bedtime routine. I am a married mother of an autistic 10 year old who finds herself flying solo this summer as Jim is in SD working. I generally shut my PC off before I get my son settled for the evening. <br />
<br />
<br />
Politics are a saucy subject that one hopes will lead to a charged, yet a respectful dialog. As individuals, each living very different lives we can expect nothing less then different view points and opinions.<br />
<br />
My thoughts on the debate Thursday evening are; I was impressed with no one. On the positive note, it is early in the game. <br />
<br />
I, like so many want one particular candidate to shine, have all the answers and a sense of self respect for themselves and we the people. I have been a registered Republican and a registered Democrat and voted along both of those party lines. I also have voted as an Independent in the past.<br />
<br />
I believe people vote according to the issues most at hand for them and those they hold close.<br />
<br />
For some, they are focused on taxes, others it is health care, the struggling economy, education, civil rights, and the list could go on...and on.<br />
<br />
Each person generally takes the position of what a candidate can do for them and fails to see the big picture of unison. <br />
<br />
I believe that lifting people up rather then suppressing them is a win-win situation for all. I believe in equal rights for all. If you are an American citizen and tax payer, you should be allowed the same civil rights each American has ( or is suppose to have ). I believe strongly in the separation of church and state. Religion in my opinion, has no place in politics. <br />
<br />
I believe strongly in public service. <br />
<br />
I am a avid history buff, our country has managed to overcome so many hardships and struggles. I do not believe one person alone can take the responsibilities for the issues our county faces nor solve all of our current struggles alone. <br />
<br />
In my opinion currently, we are a bitter and angry people. Self service and greed seems to drive people in positions of power. <br />
<br />
I do not believe we will see real issues resolved with this way of thinking. <br />
<br />
I wish to hear from candidates what their opinions and goals are, not what the person standing next to them has done in the past. We know collectively that living in the past is no solid way to strive for a future.<br />
J.Julie Jurgens-Shimekhttp://www.blogger.com/profile/16079760792510831834noreply@blogger.com0tag:blogger.com,1999:blog-4394649094750008891.post-60004218740594734072011-05-13T15:20:00.000-07:002011-05-13T15:20:23.018-07:00WITHOUT WARNING I HAD TO BE TOUGHWithout Warning today Mike's behaviors came full circle.<br />
<br />
If you have read my books on Autism and our family you are well aware that we have had some huge hurdles with behaviors. We have had many a dark day with explosive behaviors from Mike. This was a couple of years ago and after a Behaviorist who works primarily with Autistic children intervened we found our groove. That groove first and foremost was Mike, then his dad and me, and his teaching staff. <br />
<br />
Mike really made tremendous turns in his behaviors and given the tools to manage them we were on a calmer path. Calmer at home almost always, that I entered a far to comfortable position I realize today. <br />
<br />
The end of the school year is fast approaching, only a couple of weeks left. Mike is no different then other students, he is getting anxious for the school year to end. He feels the change in the air and knows that summer is upon us. I have noticed a bit of apprehension the past month or so each morning. He is less then eager to get out of bed and get dressed. He drags a bit more in the morning and is a bit agitated when I put his shoes on and we walk to bus in the morning. Even with this, we did manage to go on with our day, he at school learning and I at home trying to get much needed work done. Summer is soon here and my time to work gets very limited. When summer school break is here, my job is Mike and Mike only. I manage our home, Mike, two Labradors, 4 acres of property ( Jim does the mowing when he can, other wise, I hire someone), a large vegetable garden, swimming lessons, summer school, a older son off to college often still needs mom, and all the daily living that come with a special needs child. I have no free time, I sleep very little. I need to have all my ducks in a row when school break starts. My time for writing is very limited. Mike takes a set of eyes on him at all times.<br />
<br />
I am rambling here off course of the premise of my blog here today. <br />
<br />
To cut to the chase here- this morning when I got Mike up or I should say attempted to get Mike up this morning our fate was already in motion.<br />
<br />
Mike was having no part of going to school today. He was angered and let me know it for an hour and a half strait. He hissed at me, put his hand in the air many times as if to warn me that he might strike. He refused to get dressed. He yelled "no dressed" "no school" on and off for an hour and a half. He was angry about everything. From the breakfast I made ( the same as every day for 7 years ) to the movie I started for him in the dining room for him to eat and watch. Nothing I did was right. If I spoke soft and quiet as not to agitate, he was mad that I spoke soft. When I spoke in a normal tone, he was mad. If I raised my voice as his was so loud, he was just as mad as when I spoke soft. <br />
<br />
It was a battle that had no winners. I walked away several times to cool off but he followed me to continue the fight. I had to get him dressed first. I tried all my old tricks, talking to him about it, helping him calmly -- this most often works. Not today. I allowed him time to get dressed on his own. No go there. I also knew this, he had to get dressed and go to school. He was not ill, we had not been up all night so he was tired. He was drawing a line in the sand with me and daring me to cross it. The look in his eyes was "game on". It is a look that I have not seen in a long time but recognized it when he showed it to me. I got him dressed and he fought me every step of the way.<br />
<br />
Mike is a fast learner and never, ever forgets anything. If he does something once and has the outcome he wanted, consider it will be used the next time. Breaking a habit or redirecting a behavior is a must at our house. Often it gets worse before it gets better. <br />
<br />
After an hour and a half of a tough time I got Mike to the bus. He still did not want to go and he began to cry. His face was so sad and alligator tears were free flowing. The look on the bus drivers face spoke of compassion to him. She was so sad for him and tried as I did to console him. He hugged me and gave me a kiss on the cheek. I held it all in and wished him a good day and said I would take care of his toys while he was gone ( a job he gave me years ago & reminds me I have each and every day when he leaves for school ). I shut the door to the bus, turned and walked away back to the house. As tough as I had to be for him the moment I turned around I broke out in tears. Each step closer to the house the more they flowed. Two eager and happy Labs greeted me when I walked in the door. They also have a routine that they need from me. They get their breakfast when I return from putting Mike on the bus. <br />
<br />
I managed to stop my crying to call his teacher. By this time Mike had arrived at school, still crying and they were also questioning what was the matter. We spoke, I told her we had a really tough morning, one we have not had in a very long time. I told her the easy way out was to keep him home and start another problem come Monday. She agreed and said I had done the right thing as hard as it is. I told her I would gladly come get him if they thought it was best. I called later again a few hours later. He had pulled it all together and was doing OK, not great, but OK. He seemed to be having a downer day and just was sad. <br />
<br />
I walked into the sun room and just sat on the floor. I cried and cried and the dogs tried their best to comfort me. The sooner I pull it together the sooner they get fed. I sat there almost crippled and weak. I could hardly get up about a half an hour later. I was exhausted. I have not had this type of exhaustion for a long time. A mental drain that can really take me down. <br />
<br />
I finally got myself up, attend to the dogs then ventured to Mike's room. His room is always in need of my attention. Mike loves things. Toys, pictures, his drawing, his movies, his books and a zillion other things I seems. He loves to have them where he can see them and touch them. The theory of everything has it place and everything in it's place is not something Mike can do. He wants everything around him and in his sight and within reach. I have to organize it often and put some type of order to it. It is not messy just unbelievably cluttered. <br />
<br />
I spent about a half and hour in his room. I have to say he does have some really cool things for a kid. He loves his laptop and had really been busy creating his room of organized kayos. Maybe the issue was he just did not want t leave it today. I know he would rather do what he freely is allowed to do on the weekends, his own thing. He watches movies, is always busy on this computer, he draws, plays with his toys, creates these little pods of special things in a organized way I will never understand. It is his way and we let him do his thing on the weekend. Maybe he just needed the weekend to start this morning and not at the end of the school day. I will never know. I just know it was a horrible morning. I am proud that he managed a good day at school with no further behaviors at school. <br />
<br />
He arrived home looking tired, we both were at the same "event" this morning. I was wiped out, I am sure he was also. I kept busy the rest of the day. It is to hard on me when I get so upset to just sit and stew. My mind gets the best of me, I ponder and most often come to the conclusion that I am a horrible mother and rotten wife. Who needs that stuck in their head. Had the morning gone a more positive way I would have thought I was fantastic. I prefer fantastic over failure any day.<br />
<br />
It's almost five o'clock in the evening. When I am stressed I clean, my house looks fabulous for the weekend. I also like to organize when I am stressed. I cleaned my desk that was in great need of attention. I cleaned the refrigerator and shopped to stock it. I did laundry and swept the garage. Something I never do, Jim does. I thought of my Mike and had a few tears along the way. Life can be tough, a type of tough if you do not have a Autistic child or a special needs child you will never understand. It's OK, I never understood until I had my Mike. <br />
<br />
We survived and will have a enjoyable weekend. I will hope for the best for Monday morning, but will be more prepared should it turn again. Getting to comfortable in any situation most often leads to a bite in the a**. Let's just say, I am sitting on it right now, it is not as sore as it was this morning.<br />
<br />
Mike is already in this pj's. He put them on as soon as he got home from school. It is his way of telling me that he has no plans to leave and wants to stay home. He hugged me when he got home. I said I was sorry for the hard morning. He said he was sorry also. He demanded his snack, and has "retired" to his room. He is busy and wishes to be left alone. I went in a bit ago, sat on his bed. He got up, came to me and showed me some of his toys. He then went back to doing his thing and I have respectfully left him alone. As he wishes. He had earned it after the day he has also had. <br />
<br />
I love him so very much.............................<br />
<br />
JJJSJulie Jurgens-Shimekhttp://www.blogger.com/profile/16079760792510831834noreply@blogger.com0tag:blogger.com,1999:blog-4394649094750008891.post-8712470283618419192011-04-14T15:43:00.000-07:002011-04-14T15:43:49.166-07:00Books - # 3 and # 4Writing a book is not an easy task. I am currently juggling two books. One is on Autism the other is a novel that I either love or need to enter therapy once it is published. I started my novel a couple of years ago. My second book had just been published and I was looking for a creative outlet but desperately needed it to not be on Autism. What I found was I dove in head first in my novel, it was a book I had wished to write for a long time. I lacked the time and was very worried about taking on another project while following my writing motto- write what you know- stick to what applies to you and you will do well writing. I was ready to leave my comfort zone. <br />
<br />
<br />
My novel- currently titled "The Sleeping Demons" *TM*. I have no problem letting the title out as chances are it will be re-titled before publishing. It is a demon let me tell you! Twenty-two chapters already and I can not seem to let it go down the path of completion. I have no clue how it will end as of yet. There are several options and all in my opinion are great and satisfying. My type "A" personality can be a bugger to deal with at times. <br />
<br />
To give a brief blurb is to say it is a thriller/mystery/who done -- it with politics involved. The best part of the novel is it is filled with the stories of the people I have met in my life, all intertwined into one story. I have the great pleasure to know some pretty fantastic people who live very interesting lives. FYI- I have changed all parties names- but you will find yourself if you are a character, as I have made it very easy. Names are different- first letters of names are the same. <br />
I have allowed the first few chapters to be viewed and I was thrilled with the response from each person for more chapters. I am sorry to say I have yet to let those go at this time. <br />
<br />
I still have much work to do and a few rewrites for my own comfort and then the dreaded editing process. I hope it will be on shelves by the end of this year. I am nervous to part with it. The art has not even started on it, however I can close my eyes and see the cover of the book. I love each aspect of the creative process and have great difficulty stepping back and letting others do for me, even when it is their job to do so.<br />
I also am giving great thought to publishing it under a different name. I have a few that I write under. Thriller novels do better under a male name, I am sorry to report. <br />
I will keep you posted as the process gets closer. Nevertheless, it is exciting. Nothing compares to the thrill then your book arriving from the publisher - the first one off the press.<br />
<br />
My second book-<br />
I believe the solid title will be " We Travel a Different Road-The Autism Super Highway" * I have already had it trademarked by the way * thus the *TM* on the above also.<br />
<br />
I am excited as the process moves along step by step. The cover is proving a bit complicated. I want a road map, cartoon style, a car - cartoon style and Jim, Mike, and I with our real photo faces in the car. It takes a lot to rattle me in the complicated department. My life is complicated from the moment my eyes open in the morning and it does not end until I close them briefly each night. Frankly, my life can get real complicated while sleeping. You either roll with it, or succumb to it's madness- we be rolling here at our place. <br />
<br />
I own all the rights to my books and other publishing. It comes with great pride however it makes for a little fish in a big ocean at times. I lack at times a real understanding of what I want and the reality of what can be done in the form of publishing. My art gal, editor, and marketing people I am sure would tell you I am a handful at times. It is a learning process and it changes all the time. Just about the time I get it, am a confident player in the field, the game changes. Such is the game of life. I be playing.<br />
<br />
This book is a focus on Autism, Family and Life as one navigates its way to live it with so and many obstacles and worries. We get there, we just travel a different road, often without a map, a car, gas, a rest stop, or someone to rotate the tires, fix the engine, or provide an oil change. We still manage to get to the destination, often with one of us pushing the car, while the other steers, trying not to swerve into oncoming traffic, because of all the distractions. I just wanted to check in, give a bit of an update on what I am doing. I am excited and stressed by the process, I remind myself how dull and boring life would be otherwise and that just would never do.<br />
<br />
All my best- JulieJulie Jurgens-Shimekhttp://www.blogger.com/profile/16079760792510831834noreply@blogger.com0tag:blogger.com,1999:blog-4394649094750008891.post-46692515937620986682011-03-06T13:03:00.000-08:002011-03-06T13:03:27.028-08:00Love Winter-Awaiting SpringI LOVE WINTER! I have always lived in Minnesota and therefore embrace all the beauty that the winter season brings.<br />
<br />
A few weeks ago we had a swift change in our temperatures. The feelings of spring were felt with temps in the mid 50's. We lost about one half of our snow over the week. After fighting it for a few days, I gave in. I began to look at plans for the yearly Shimek vegetable garden, plan a new patio and landscaping project, the designs for a outdoor adobe wood pizza oven, new solar lighting for the trees in the back yard. I even began to plan for dinner parties that we would again host for our fabulous friends & family. I love to plan dinner parties! I love to look at new linens, tableware, the latest in gadgets, study menus and the new cocktail of the season. <br />
<br />
I took some time to browse at some new flower ideas and shrubs for a landscaping project that will be done this spring and summer. I am never impulsive and must think every possible idea to death. I am still trying to decide on paint for the walls and carpet in the master bedroom. I looked at samples until I could no longer say my full name and had to hang it up for a later date. The plan was to freshen the master bedroom, install closet systems and do the same in Mike's bedroom this winter. My husband Jim did his part. He got everything ready to go and volunteered to do the painting before the carpet guys installed the new carpeting. My job was one paint color and carpet for two bedrooms. My part could take awhile. I will pick my usual, a tone of beige/brown for both. What can I say.....there are hundreds of tones for beige and brown. Give me three choices and I can manage, more then that and I see spots. It took me three months last year to pick new appliances for the kitchen, we did stainless so color was not a decision. There are at least twenty brands with hundreds of options.<br />
<br />
I was excited to put the inside projects on the back burner and embrace the outside ideas. Just when I wrapped my head around an early spring, we got 15 inches of snow. Oh, no.....back to paint and carpet. The people at Home Depot see me walk in the door and quickly huddle playing paper, rock and scissor to see who is stuck with me. As I compose this, it is once again snowing. I think another 5-10 inches over the next few days.<br />
<br />
Back to the garden. I am no fan of gardens I wish to say. We have a garden because Mike is autistic.<br />
<br />
Mike, like so many autistics has real food issues. He takes being a fussy eater to an entire new level. He does have a few dishes that he loves and are staple parts of his food intake. The main one is spaghetti pasta. He would eat it for every meal if I allowed. I do not, however he eats it several times a week. After much research on autistic diets, the consensus was that organic is the only way to go. I would hit the local farmers market during the summer and cook organic when I could get it. After going organic, then going jar/can the rest of the year we could see and taste the difference. I took the time to really research what was on the labels of the food I was feeding Mike. That is all that it took.<br />
<br />
We live on a beautiful piece of property. Just shy of 4 acres of waterfront property. We had ample space. It was time to plan and plant a garden. If you want the best, then grown the best. <br />
<br />
Jim was the real force behind the project. I would gladly water the garden and deal with it when it was harvest time. Otherwise, Jim was in charge of the garden. He was nervous when I got near it and heavens for bid, I stepped in it and touched something. <br />
<br />
Jim did the planting. Carrots, onions, green beans, cucumbers, many variates of lettuce, kale, spinach, peppers and tomatoes. We had 24 tomato plants the first year, even more the second. I would soon learn the art of making "sauce" for Mike and freezing it.<br />
<br />
As we began to harvest the garden, I looked into the best way to preserve our vegetables. Freezing was the best. We had a large chest deep freezer. There was no way that would hold all of the food. Off to Home Depot to purchase a upright freezer ( again... paper, rock , scissor ). I managed to pick one and have it delivered to the house. I thought it was maybe a bit of over kill. I was wrong. Even with all of this, I was still calling friends to come rescue me from all of these veggies. We enjoyed the fruits of the garden, fresh all summer long. I then took to preserving the bulk of the harvest. On to sauce making.<br />
<br />
Twenty four tomato plants sounded nuts to me when Jim started planting. I can tell you I was up to my waist in tomatoes for several weeks. All I did was make sauce each day for weeks. I made a "special" sauce for my "special" guy.<br />
<br />
It took fresh tomatoes, finely grated carrots, green peppers, onion, kale and spinach to made my sauce. I went to a butcher and got fresh beef and had them grind it for me. I made the sauce, about 5 gallons a day I could manage. I let it cool, the packaged it in freezer bags marked for Mike. I lay them flat each night on a large tray in the upright freezer. In the morning, I retrieved the tray, stacked the frozen bags and started another batch of sauce. <br />
<br />
Making this much sauce each day, day after day was exhausting and messy. I had tomato sauce on the walls, the floor and the ceiling. I cleaned and scrubbed, just to make a mess the following day. <br />
<br />
To Mike, this is just pasta sauce. He has no clue all the hidden vegetables that are in the "sauce". He would never eat carrots, peppers, onion, kale and spinach. Because we control what goes into his food he gets only the best. We use no chemicals what so ever. Good soil, sun and water. I grow my own herbs to add flavor and this year, we are going to try growing garlic. Unsure if it will leaves or bulbs. <br />
<br />
We use our sauce for pasta, chili, soups, casseroles. You name it, we use it from our garden.<br />
<br />
It is unbelievable to me how much work it entails. I cooked my hind end off the past two years making sauce and freezing veggies. Every minute of it was worth it. <br />
<br />
Twenty six tomato plants were done last year. I am unsure what Jim plans for this year. It keeps getting bigger and bigger with new veggies added to the planting list each year. I am excited to see what he comes up with and how I will incorporate it into my sauce for Mike. <br />
<br />
I have managed to make sauce to last Mike the fall, winter and spring. Not an easy task. I have about 30 gallons left in the freezer. It should be just enough to get him to the first pick of this summers season. <br />
<br />
I encourage parents of autistic children to try if possible to grow your own food for your child. If someone would have told me a few years ago, that I would be cooking for almost a month strait making organic, home grown food for Mike, I would not have believed you. But I do, and he loves it. <br />
<br />
<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhuyoJDhJOewqrs8PbcGlY3-UzM-mo9KtQzbFvRYhjy4zYrWzYGXaey5sLqS1Ds1ehyOCVSzvLMAUCJfz8-6qpqlRm5rrrAGqG-PDxDr5yWqY8YXqrfW6QBhyTPRqsYNjFxGbIHuNQz5Kul/s1600/Photos+263.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="240" l6="true" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhuyoJDhJOewqrs8PbcGlY3-UzM-mo9KtQzbFvRYhjy4zYrWzYGXaey5sLqS1Ds1ehyOCVSzvLMAUCJfz8-6qpqlRm5rrrAGqG-PDxDr5yWqY8YXqrfW6QBhyTPRqsYNjFxGbIHuNQz5Kul/s320/Photos+263.JPG" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">1 days picking - this went on for about a month (24 plants )</td></tr>
</tbody></table>In closing we have also taken to purchasing organic farm chickens from a local farmer. We get on average 12 at a time. There is a HUGE difference in the chicken. First of all they are about 2x the size and no hormones or antibiotics in the bird. They taste fabulous. We are slowly moving away from what is offered to us and seeking out what we want to have. This year, organic beef will be added. <br />
<br />
I think I need a 3rd freezer............<br />
<br />
Until the next time, I offer you all my best.<br />
JulieJulie Jurgens-Shimekhttp://www.blogger.com/profile/16079760792510831834noreply@blogger.com0tag:blogger.com,1999:blog-4394649094750008891.post-79854708132134841112011-02-09T10:15:00.000-08:002011-02-09T10:15:35.497-08:00Where Did I Go?Interesting title for my Blog today. The question is where did I go for so long? The answer is... no where. I have been here plugging away writing, even blogging. In my draft file of my Blogger I have 13 drafts- well written, just never posted. I am not generally a impulsive blogger. I have many thoughts, even taking the time to write them, just not always one to post them. I may read them again and see if they still hold merit to publish here. <br />
<br />
I continue to write. Politics and Special Education seem to take precedence over everything else that I write. We can give a shout out that politics have been sparky enough to write about and the economic situation in our country has more then had an impact on Special Education. <br />
<br />
I am almost finished with my third book on Autism- still yet untitled-it manages to find it's own title as it nears the end. A novel that I am working on (19) chapters in, has also taken much of my time. <br />
<br />
In the interim, I sent my oldest off to college, my youngest off to the 4th grade, buried a beloved pet and fell in love with a new one. Still married to my man Jim ( saying it that way makes it sound as I may have been on the fence about that ). He remains as adorable and patient as ever. <br />
<br />
I am off to read my drafts and see what I think is still relevent to today. Life is good, Mike is great and life continues on. I will make an appearence here more often and see what touble I can get into. I reamain ever the spark, carrying my spoon to stir the pot.<br />
<br />
Peace` JJJSJulie Jurgens-Shimekhttp://www.blogger.com/profile/16079760792510831834noreply@blogger.comtag:blogger.com,1999:blog-4394649094750008891.post-61512675650142633502009-10-26T11:42:00.000-07:002009-10-26T12:41:59.797-07:00H1N1 No More At Our HouseToday was Mike's first day back at school after contracting the H1N1 influenza virus.<br />It was a long and bumpy road lasting a total of 12 ill days. We kept him home an extra two days from school as it was almost the end of the week and continued at home for the remainder of the weekend for safe measures.<br /><br />As I have said in a past post - this is a bugger of a virus -. I have spoken to Dr.'s and nurse's, school personal & school medical staff. The one thing that I continued to hear from them is " keep your child at home even after the symptoms begin to improve for a MINIMAL of 7-10 days". <br /><br />This was reiterated to me constantly along with the instructions, that if parents would keep their children home and follow the guidelines this would not be spreading as it is.<br /><br />Please keep in mind that if you have other children that are exposed to H1N1 in your home and even if they are not symptomatic at this time, you need to keep them home with your ill child and follow the guidelines. I was told that by doing this we could significantly cut the risks to other students.<br /><br />I know, I know....I say this with a understanding that as a freelance writer I do not report to an office everyday. I have the ability to remain at home and not have it effect my job. With that said- find a way.<br /><br />I missed several board meetings, a newspaper interview, some book promos, and a concert that I was to attend with my oldest son. I purchased the tickets over 6 months ago. Let alone social engagements, and pampering appointments. Boy, do I need a manicure :)<br /><br />Yes, I work from home- most often. Not always and furthermore, let me tell you that while Mike was home, I was getting zero work done. My attention was on him and his needs and trying to keep my home as germ free as possible. I have scrubbed and washed everything I could during his illness. That along with little sleep for a total of 16 days I was not getting my "writing work" done.<br /><br />I realize that it is a sacrifice, but it is what you need to do. I was here in the house for twelve days before I felt that it was OK for me to go out into public to do a bit of shopping. I wore my gloves ( it is cold here in MN ), used the cleaner at the store to clean the cart handle, talked with no one and did my best to have no contact with others. My kind and generous Mother came several times to my home and dropped off supplies during the first twelve days. I soon ran low on Tylenol, bottled H2o ( all that Mike could keep down ) basic groceries, more cleaning supplies. With our her I would have been in a real snag. Granted, more friends stepped up and offered anything to help. Thankfully, we did not need to call on them because of my Mother. We did use good sense and she brought supplies to the door and left them. It may be a bit much to some but hey, who wants to catch this let alone be the one to give it to someone? One person sick can start the trail for hundreds or thousands. It has to begin somewhere. <br /><br />I am glad to report that neither Jim nor I got ill. I received the original "swine flu" vaccination in the late 70's. I was told by my Dr. that the current H1N1 virus is not the same to the "T" but has many of the same components and may offer just enough of a resistance to cover me from getting the H1N1 virus and getting ill. Thus far it has done just that for me. We still do not know if Jim got the immunization in the 70's that I did. What I do know is I got it in school, when I was in the 2nd grade. The entire school got it. I remember this only as it was the first time I got a shot at school and they used a gun type of shot. It is the first and only time I ever had that or saw one. To be gross I also remember several kids<br />who wore short sleeve shirts that day with blood running down their arm before a cotton ball and band aid was applied. It is strange the things that one remembers from their youth. I recall bringing a small slip of paper to the library for the shot with my name and my mom's signature on it. My parent's also got the shot. They went to the public library in our town and got it too. My mother has remained well also so far. <br /><br />I should run here, Mike will be home in about ten minutes from his first day back. I am anxious to read how it went and how the day was. I have LOVED the day alone for a few hours. I was in much need for some quiet today and the opportunity to read and write a few things, this being one of them.<br /><br />Stay healthy !!<br /><br />J.Julie Jurgens-Shimekhttp://www.blogger.com/profile/16079760792510831834noreply@blogger.com0tag:blogger.com,1999:blog-4394649094750008891.post-62799266824185263332009-10-18T13:02:00.000-07:002009-10-18T13:37:41.243-07:00H1N1Mike has the flu and it is believed to be H1N1.<br /><br />We had a wonderful Sunday afternoon last week. The Viking's were winning on the TV and we had guest over for dinner. After a great meal and chat time with friends, I started to gear up for the week. At about 6:30 P.M. I got Mike dressed in his P.J.'s and noticed that all of a sudden he looked pale and felt warm. It was a fever. A bit of Tylenol hidden in some juice and he went off to sleep. About 11 P.M. I heard him up and went in to check on him. I asked him if he needed to go to the bathroom, he did- and then he vomited. A temp of 102.7 and again more Tylenol. The problem was, with in a few minutes of juice with Tylenol, he was vomiting again. This went on all night.<br /><br />By morning he looked even worse. Asking Mike about his symptoms gives no results. They say the H1N1 often starts with a sore throat. Asking that question gives no answer. Asking Mike about his stomach is the same. I could only go by what I could personally see. He had a fever and was vomiting.<br /><br />Monday and Tuesday were rough. His fever was hard to control and getting meds in him impossible. I called the ER at 11 P.M. Tuesday night as his fever had come down and now again spiked to 103 and we could get no meds in him to stay down. He looked just awful. The ER and the clinic did not want to see him unless he had a fever of 105 ( I know I was shocked too ) and/or he was turning blue when he tried to breath. They told me to give him a cool bath and try rubbing alcohol to bring the fever down. The cool bath helped but he was miserable. His breathing was fine this entire time, however he had bouts with hard coughing. <br /><br />It is now Sunday and he ate for the first time besides a few bites of jello. He only wants water to drink and is scared to eat anything. <br /><br />Mike was exposed to the H1N1 virus at school. His symptoms were those of the virus. It was a hard virus to deal with and parents should be cautioned. Not panic, just be cautious.<br /><br />It is Sunday again - 1 week from the onset. I am exhausted. No one else in the house has symptoms of the virus. I have slept so little and could just sleep for days I think given the chance. I plan to keep Mike home again from school tomorrow. He is still coughing a bit and rests in the afternoon this past week. This has taken all of the vinegar out of him. He just wants to lay in bed and watch movies and rest. He did fire up his PC and did a bit of drawing today he has left his bed open and crawls in often to just rest. He is willing to drink water but food is slow going. When I think he is well rested, able to make a full day of it and is back to eating well I will send him. We are only on week 6 of school and he has missed over 2 full weeks so far this year. <br /><br />My mom was a lifesaver and brought us fresh supplies this week as we have stayed home to keep from passing this on to others.<br /><br />A bit of FYI- the H1N1 shot comes in 2 forms. The shot DOES have mercury in it. The nasal one DOES NOT. We will still have Mike immunized with the nasal when it is available.<br /><br />If you have concerns talk with your Dr.<br /><br />I should go and check on him and offer him more ice water. <br /><br />Stay healthy!!Julie Jurgens-Shimekhttp://www.blogger.com/profile/16079760792510831834noreply@blogger.comtag:blogger.com,1999:blog-4394649094750008891.post-85128241328769400232009-10-05T11:57:00.000-07:002009-10-05T12:05:40.070-07:00Back to School For Mike<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjB-uZbWfMafH1kn3NLqzdZq-vQuK5yibqLwKvD4bsAIXg3AzReAr1PK8FaXb1Kf3RTrKEHv3yc7IAxxMIL-vQnFjYvEgJI7A1WxgKEiSRLQplgDpgIO2EfScDvGeZYGzHpJQTjZ6IKsHLV/s1600-h/Photos+287.JPG"><img style="display:block; margin:0px auto 10px; text-align:center;cursor:pointer; cursor:hand;width: 240px; height: 320px;" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjB-uZbWfMafH1kn3NLqzdZq-vQuK5yibqLwKvD4bsAIXg3AzReAr1PK8FaXb1Kf3RTrKEHv3yc7IAxxMIL-vQnFjYvEgJI7A1WxgKEiSRLQplgDpgIO2EfScDvGeZYGzHpJQTjZ6IKsHLV/s320/Photos+287.JPG" border="0" alt=""id="BLOGGER_PHOTO_ID_5389194022150320258" /></a><br />Mike is a 3rd grader! We are excited to embrace the school year and hope for the very best. We believe the key to Mike's potential is in his education. We have had many bumps in our road with Mike's education. We continue to be positive and hope for the best. It is our goal that given a bit of time Mike and his teacher's will find their groove. <br /><br />Here is a photo of Mike the 1st day of school 2009-Julie Jurgens-Shimekhttp://www.blogger.com/profile/16079760792510831834noreply@blogger.com0tag:blogger.com,1999:blog-4394649094750008891.post-31724350847553771502009-09-08T14:41:00.000-07:002009-09-08T14:51:22.596-07:00President Obama's Speech to US StudentsThe ideology of members of the Republican Party and furthermore the Right side news media to encourage parents to keep their children home from school today is preposterous, again another shock to the absurd thinking they continue to entertain me with. The President of the United States delivered a speech to US students this morning.<br /><br />A brief reflection of history here-<br /><br />President Reagan also delivered a speech to US students in the 80's. He focused his speech to school age students on governments need to cut taxes. <br />The 1st President Bush also delivered a speech to US students in 1991. He asked for the countries students to help him achieve his goals as President.<br />As we know both of these Presidents were Republican. The news media nor the opposing party made issue with the President of the county addressing students. <br /><br />Now in the year 2009 the President of the US delivers a thoughtful speech to students: discussing respect for their teachers, encouraging students to take their academics seriously, to stay in school, graduate, to study and consider their public education as a opportunity for their future. <br /><br />This is what the Right side finds worthy of attack? This is what all of the frenzied was about? The fear antics that socialism will be spread to our children if they listen to the President of the US? <br />Give me a break-<br /><br /><br />I recall President Reagan's speech as I was still in school. I was not a student at the time of President Bush's speech but did view it today on the internet. <br />I have listened to President Obama's to students today.<br /><br />Student's today are facing a barrage of obstacles today that I never did as a student. Our county is at war, we are in a economic crisis as a nation. Many of these students are witness and living the with the true understanding of what war does to a family as their parents are far away fighting that war. Many students are living in situations where the family is facing the real impact of the finical crisis or have lost their home or parents are unemployed. Drug use by students is at an all time high. The high school drop out rate is also at a all time high. Many students are living in single parent homes. Do we really need to scare them anymore? <br /><br /><br />Today's address to US students by a President is not a first nor I hope not the last that a President will give. <br /><br />Do we need people to put fear in these students that holds no merit? I think not.Julie Jurgens-Shimekhttp://www.blogger.com/profile/16079760792510831834noreply@blogger.com0tag:blogger.com,1999:blog-4394649094750008891.post-63904329964223893892009-09-02T14:17:00.000-07:002009-09-02T14:58:18.406-07:00Six Days and CountingWe are on the count down for school to begin! I never know just how Mike will embrace the start of the school session. He has had the world by the tail here for three months. We have spent our summer break very relaxed with most everything revolving around Mike: just as he likes it to be ( wouldn't all of us! ).<br /><br />We will shop for our school supplies and some new cloths later this week. I was not ready to shop until now as I was unsure if Mike would be excited for this or dreading this. Mike does not have the understanding for me to shop and tell him that this is for school in a few weeks. For Mike if something is purchased now - then you use it now. Later is not something Mike does real well at.<br /><br />Mike has enjoyed his summer playing in his play yard, jumping on the trampoline, 4-wheeling, watching movies, drawing, and honing his laptop skills and running the printer. He loves a routine that is just his own with little to no interruption's. We have a shopping day one day each week. He loves to shop but assumes that shopping is just for him and what he wants to have and then we should be done and get back to home.<br /><br />I have tried to get Mike back into a early bed time routine before school starts. That has not gone very well. The only person who appears to be ready for bed at an earlier time is me. Jim has been gone much of this summer working so Mike and I have been running solo here. He misses his dad and I sure miss someone to tag team with even if for just a brief bit of time in the evening. <br /><br />In 6 days that bus will be in our driveway and Mike will have a big surprise. I will ease him into it again and will mention school starting this weekend. I have brought it up a few weeks ago and he was unhappy. He yelled a bit and ran to his room. He loves it here at home with his mom. He loves every ounce of my attention to be only for him. Hey, who wouldn't like that? It is however not a reality. I have enjoyed my one on one time with Mike around the clock for the past 3 months. I am however exhausted! I look forward to both Mike and I finding our "public" legs again. He needs to get back in the routine of learning and relating with other people besides his mother. I need to get back to "playing" with grown ups for the day. Both of us find our groove when we are summer bound at home. It is always a concern when it is time to shift once again.<br /><br />I will enter Mike's new school year with the highest expectations for all involved-Mike included. Mike has a voice and has found some words. I believe with proper attention and time with his fantastic speech teacher he may find more of his voice and a clear understanding of the power of his speech to be the key that unlocks many doors in his life for him.<br />Mike and I believe his teachers last year saw a marked improvement in Mike and their ability to reason with Mike when a few words came. I continue to hope ( and pray real hard ) that they find the time and staff to invest <strong>more</strong> in his speech work as without good communication between them they are often at odds. The time to investment in him is now. Meeting Mike's educational needs in my focus for his school year.<br /><br />I know many families are in the same situation as we are with school starting. There is a bit sweet and sour that comes with this time of year. Just know that you are not alone. I will be awake the night before school begins and will pace the floor when he leaves and wonder how it going? I will like many have days when Mike is upset at leaving to go to school. I wish I could stop time and keep Mike young and innocent and be there for him always. I know that is not realistic so we must find the tools to move forward and do the best we can for our autistic kids and prepare for a time when we are no longer here. <br /><br />With that said- here is to another school year!!<br /><br />Peace`<br />JJJSJulie Jurgens-Shimekhttp://www.blogger.com/profile/16079760792510831834noreply@blogger.com0tag:blogger.com,1999:blog-4394649094750008891.post-51485135363071446192009-08-28T13:23:00.000-07:002009-08-28T16:25:01.012-07:00Health Care Reform Telephone CallWhile minding my own business this week ( actually it was the day my PC crashed this week ) I received a phone call of a solicitation/pole taking nature. I will tell you right from the get-go here I hate to talk on the phone. I have joined the many that live by email, text messaging, and voice mail. I have even gone as far as several years ago disconnecting the home answering machine as I really despised the force that is placed when someone leaves a message, as to not appear rude you have to call them back even if you wished to not take the time to talk to them. I still have voice on my mobile phone. When my friends, colleagues, or family give me grief I always remind them, the people that need to reach can always reach me as they know how to find me if I do not answer my phones. <br /><br />I absolutely lack the patience to contend with solicitation/pole phone calls as I added our number many years ago to a " Do Not Call List " for some reason that is disregarded by those that can't seem to find better use of their time in my eyes.<br /><br />Back to point here... I was already having a horrible day ( as mentioned my PC had died unexpectedly that morning and I was not taking it well at all ). The phone rang and most irritating was that my caller I.D. came up as an unknown number. I only get phone calls from a few people that are registered as "unknown" to my I.D. service, they are all Law Enforcement Officials that have their number blocked to the public. I did not hesitate to answer the phone.<br /><br />When I answered the phone a soft spoken women was the other end of the phone. She did not give her name nor address me with mine. She stated that she was with "The Republican Party Against the Obama Heath Care Reform Bill". In most cases a person calling my home under solicitation venues will if I am in a pleasant mood be told " please do not call here again" if I am not in a friendly mood they get....dial tone. I lack the time or a realistic understanding of what they are attempting to accomplish. A one sided/viewed conversation with a total stranger is not my idea of a productive conversation. Frankly, even if one takes the time to listen/converse, what is the actual outcome? Nothing has changed in the " real world" you just took your time to chat with someone on a topic they want you to listen to. <br /><br />My mother had mentioned a couple of weeks ago that she herself has received a call from, I am unsure at this time, if it was the "pro for" or "con against side". She mentioned that she said only a couple of sentences to them that went something like this- "I am going to listen to both sides and then<br />make a decision". That seemed to be the end of that and all moved on. I did however after listening to my mom mention this to me was to soften a bit and re-think how I would handle this call should it arrive at our home? As I mentioned I am unsure what side called her. I looked at it this way, I have a 25% chance of taking a call from the Republican side of this issue. Jim answers the phone in our home also so only a 50% chance I would take the call. Toss in the rest for both sides you have 25% of a chance. <br /><br />Maybe I have been to harsh on people who call for a solicitation purpose, I thought? I should be willing to listen to the opinion of another and politely state to the person wishing to sell me new windows or a roof to my home " no thank you, have a nice day". It made me think I might be just a bit of a crab when calls came that I did not wish to have.<br /><br />I made a decision a couple of weeks ago that if I got "the health care" call I would listen and be objective no matter what side it came from. To be bold, I have questions for both the "pro" and "con" side of this issue as I believe most do.<br /><br />Back to the "soft spoken" Republican. I listened for the first couple of seconds and instantly was mad. I was having a crisis at this time with my PC crash and was in a dire panic about so many things, I did not have time for this "junk" ( trust me I used a kind word instead of the one I really wanted to use). As quick as the thought ran across my mind I firmly reminded myself that I have made a commitment to no matter what side called ( if they did ) that I would be objective and listen to what they had to say. I gritted my teeth and went to my desk to talk and take some notes.<br /><br />I was an excellent listener for the first 2-3 minutes. She had what I have to assume is a scripted speech that each caller receives. I could tell she was reading something and only when out of breath, took another deep one to continue on. I continued to listen and was fine just being a "listener" to their cause. She ended her "speech" with quoting a dollar amount that "Obama" was going to spend of my <br />"American Hard Earned Money"? The way she presented the closing of her speech, most anyone is left with the only option to say "no". She presented it as if "Obama" himself was coming to my front door and would be demanding a personal check from me written out directly to him to fund the bill. She then said "you do not support the heath care bill and you are unwilling to be the one to fund it"? Again, one if left with only the answer of "no" unless you plan to be at your front door...check in hand for "Obama" when he rang my doorbell to "pick it up" and take it to Washington, D.C. for deposit.<br /><br />I took a deep breath and began to ask a few questions. I was as soft spoken as she was to me. My first questions was "will I loose the options to keep my current health care, that I am pleased with"? Her answer was "Oh, absolutely Yes, you will loose what you have, happy or not with it" "they are going to take that from you and force you to receive what type of care "Obama" thinks you should have and if you are entitled to receive that care". Her answer lead right to my next question like a bee to honey. "Can you explain to me what these "death panel" statements truly mean to the public? Her answer was "sure, I can explain that to you". She skipped the explanation and jumped right to a question for me. "Do you have a loved one over the age of 70 years old"? My answer was "yes" I do. Her response was "Obama is going to decide after a person reaches the age of 70 years old, if certain conditions and illness are realistic to the nature of the person's age to obtain medical treatment. Many people after the age of 70 will be denied health care and will die at a time when they need the health care more then anyone. How do you feel about that? You do not want to see your loved one suffer and die do you"? I then brought her back to my question that she said she would answer. I again asked, will there be so called<br />" death panels"? Her answer to me was " if Obama gets this bill passed Americans are going to start to die because of him". <br /><br />I again brought her back to the "death panel" statement. I really wanted her to say the words, not just dance to the implication's of it- rather take the bull by the horn and say it the way Republicans are stating it to the public. She did not. In her defense, say the words "death panel" once in our conversation. <br /><br />My next soft spoken question was "what about the Americans who can not afford the high cost of health care coverage or are denied coverage because of pre-existing conditions? What about all of the American children who do not have health coverage"? <br /><br />All of a sudden my soft spoken Republican had a change of heart. <strong>She hung up on me.</strong><br /><br />I can not say I am surprised. I was not angry either. I have hung up on enough pole takers in my life, I was due this as payback. <br /><br />I took a bit of time to reflect on my conversation with my soft spoken Republican. What I have to say is this.<br /><br />When referring to "My" President of this United States of America you will address him as President Obama, not "Obama" as was done countless times in this conversation. He is the Commander in Chief of our country. Show some respect.<br /><br />Secondly, get your facts strait. It just amazes me how ignorant the Republican Party has become. If you cry wolf as you have been, a time will come when you have as a party some actual truth to tell, no one is going to believe you. Democrat or Republican. Have some respect for yourself, and the party you support. It appears that respect is more then lacking across the board with the Republican Party.<br /><br />In closing, for all of the Republicans in US Government whom voted "Yes" for the end of life counseling and now have named it a "death panel". You supported it <strong>- yes that means you- to the now former Alaska Governor Sarah Palin</strong>". You have two options to the intelligent American here Republican or Democrat. <br />Did you not have a clear understanding of what you voted "yes" for when it was "end of life counseling"? Have you re-written in your mind what the definition now is? As I understand it nothing has changed, only a Democrat in office not a Republican.<br /><br />I understand more and more each day why former Governor Palin quit. She cried wolf to many times and no longer holds any creditability to her state, party or the American people. She knew when to put those running shoes on once again. Aside from her social network "Facebook" where little posts by her are made, she has all but disappeared from the public eye. <br /><br />I have discovered by writing this I do have something connected to the Republican Party to be thankful for....thanks Sarah for the disappearing act.<br /><br />I have to assume that I shall receive more calls from both sides of the health care issue. I will be fare to both sides and ask the same questions. It really is not about what party you support it is about quality of life for all Americans. If a time comes that I or a loved one is face with an illness, life and death could be at stake not what party I support. I support America and the people who are citizens of America. I want people to have a good quality of life and our health is at the top of that list. As my father said to me after he was diagnosed with terminal cancer at the age of 54. "I look around at all I have worked for and have - it means nothing to me without my health" " I would give it all up for time and it is something I do not have". <br />My father died shortly after this conversation and had great health coverage and the best of care. It is now 10 years he had been gone. It was the hardest thing outside of Mike's autism I have had to face in my 40 years. As awful and heart wrenching as it was, I can not comprehend what it would have been like to watch him suffer because his country did not find him, my father, an American, worthy of dignified, quality medical care and would rather have watched him, an American Citizen die a painful death because he was not worthy of health coverage he could afford let alone compassion. I am so thankful for his health care but think more and more about the daughter who watched her her father die without it. I pray for those families and our Government as a whole to find a better way.<br /><br />In my 40 years I have never not had health insurance. I have never been denied anything where health care is concerned. I have had the best care when I needed it that was available. As all of have learned these past few years more so now then ever. What you have today, you may not have tomorrow. It will come without warning, it will just be gone. I am wise enough to prepare for what may happen to myself or our family. One illness and I or my family could be dropped and without coverage. Then it will all change and I the insured will become one of them, the un-insured. I am a consummate planner, always have been. I am wise enough to plan for what my life and my families future could bring.<br /><br />As Americans we deserve better. We need to demand it.Julie Jurgens-Shimekhttp://www.blogger.com/profile/16079760792510831834noreply@blogger.com0tag:blogger.com,1999:blog-4394649094750008891.post-84136829852945044342009-08-25T18:57:00.000-07:002009-08-25T19:58:53.311-07:00It's Just Another Monday in ParadiseToday started out with a bit of a bang- the bang of the death of my laptop computer. This is not the first death of a PC that I have had and I am sure not the last, still it is a death. I am a stress er' given the chance and I jumped in neck deep today first thing. Like all of us I have a routine. Mine is simple. When I awake the first thing I do is turn my laptop on. I walk away and do my morning routine, grab some coffee and head for my desk. I start by scanning several newspapers and websites. I read the highlights of several newspapers, taking notes on the way so I can surf a bit more to return and read articles later that morning. Again...not today! <br /><br />We had a lightning storm last night and I think that was the issue. I had chest pains when my last PC died and what I can only describe is my first (and only ever) panic attack when my last one died. This was not as bad as I learned from the last one that my anxiety and stress did nothing to fix the situation. I paced around the house for a bit with anger. I continued to monkey with it- by chance that it would revive and come back to life. Little luck there. I found myself taking out loud to only dogs in the room who followed me when I walked as my talking they took as chatting to them. <br /><br />I went as far as firing up an older laptop of about three years. It crashed (some what) a while ago. I could not bare to toss it as I had done some great work on it and it was like a dear friend. I turned it on and to my surprise after at least two years, it came to life. It still sat on my desk since it crashed neatly closed and I dusted it every so often. What I discovered was a true blessing.<br /><br />I spent several hours reading old emails and looking at an array of photos from at least three years ago. It was a trip down memory lane and I loved it. I also took some time to go into files that I had not looked at in a very long time. <br /><br />At about 3 P.M. I could take it no more. I jumped in the car and headed for Best Buy. I was an easy sale for them and got what I wanted and even treated myself to a bit of flare to go with my new laptop. I have enjoyed the extra speaker system that I purchased already. My laptop is now stereo central- we've got tunes baby and serious sound going on here. Most laptops have horrible sound quality to them, not anymore.<br /><br />I discovered many things in the old laptop that I had forgotten. Little did I know that I still had a sizable amount of cash in my old itunes account ( I also have on the one that died today ) . I also have a ton of tunes on itunes that I never put on my ipod ( also the same for the dead one today I am sure ). It helped to find a few positives today's instead of the all the negatives of today. I lost some work and most of my email addresses. My favorites list - gone and several movies that I purchased ( I found some of those on the old PC too ). It let me know that it is so easy to have unfinished issues that still need resolution that are just hanging above our heads much of the time. I am determined to somehow get the old itunes, movies and the cash account that I have on both other laptops onto this new laptop. <br /><br />I went to the safe today and reassured myself that I did backup the seventeen chapters of my novel that were on the computer that died. I lost a bit but have the base still intact. I have no one to blame but myself that I lost things. <br /><br />As to the new laptop. It looks beautiful and has all the bells and whistles on it. Still it is not what I had and I hate change and fight it every step of the way. This I know will be no different. I also know this. In a bit of time this to will become a new friend and I will mourn the day that it to dies. I also know that I will replace this at some point and feel the same way. <br /><br />I try so hard to find a positive within a negative, learn from it and apply it to my daily life. Today was no different. I lost a friend and met a new one. My past work was done on 2 former laptops and my future work is on this one. <br /><br />I need to close this and move to the night groove for Mike. He had a great day also. He loves to shop at Best Buy. He got a few things also. He was pleased and I took him out to dinner. <br /><br />Jim has been working out of town. I was the best wife ever when he called this evening to check in. He asked how our day was and I said it was great. I spared him the drama of my day let alone the amount of my purchase on my new friend. I believe that a few things left between friends is more then acceptable.<br /><br />Enjoy the evening-<br /><br />JulieJulie Jurgens-Shimekhttp://www.blogger.com/profile/16079760792510831834noreply@blogger.com0tag:blogger.com,1999:blog-4394649094750008891.post-62658562229039865312009-08-17T13:25:00.000-07:002009-08-17T13:29:53.211-07:00Project Lifesaver Indianapolis July 2009<div style='text-align:center;margin:0px auto 10px;'><a href='https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgV5STSE1niHDaAx7lZGdNxXcBMz0NYL5sr_5rVkiTKDj0eBI-EiywVVhc8dfbdQ24gl5F08je3L0GMt6w_HWLFTQCAz8xMrv1YFUyHQQDrDYZtahMGpE6ZlX-97kwyf0cCF2Z6oHwoy99T/s1600-h/Indianapolis+2009+009.JPG'><img src='https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgV5STSE1niHDaAx7lZGdNxXcBMz0NYL5sr_5rVkiTKDj0eBI-EiywVVhc8dfbdQ24gl5F08je3L0GMt6w_HWLFTQCAz8xMrv1YFUyHQQDrDYZtahMGpE6ZlX-97kwyf0cCF2Z6oHwoy99T/s320/Indianapolis+2009+009.JPG' border='0' alt='' /></a> </div><div style='clear:both; text-align:CENTER'><a href='http://picasa.google.com/blogger/' target='ext'><img src='http://photos1.blogger.com/pbp.gif' alt='Posted by Picasa' style='border: 0px none ; padding: 0px; background: transparent none repeat scroll 0% 50%; -moz-background-clip: initial; -moz-background-origin: initial; -moz-background-inline-policy: initial;' align='middle' border='0' /></a></div>Julie Jurgens-Shimekhttp://www.blogger.com/profile/16079760792510831834noreply@blogger.com0tag:blogger.com,1999:blog-4394649094750008891.post-79388199256582622442009-08-16T08:15:00.000-07:002009-08-16T09:37:36.537-07:00Where has summer gone?I can not believe that it is the middle of August and summer is almost gone already. My only guess is that I have been so busy that I lost a season here.<br /><br />The new book is out and is doing FAB- I have been busy doing PR for the new book "Autism is a Four Letter Word: LOVE". Between book signings,interviews, conferences and scheduling for this fall --radio & TV talk shows life has been busy. Keep in mind that Mike is home for the summer and we have no help. Jim and I work opposite schedules so one of us is home with him at all times. Summers are stressful for all of us in our home...Mike included.<br /><br />I had a fantastic time at the Project Lifesaver International Conference in Indianapolis, IN in July. They laid out the red carpet for several of we speakers. What I can say is this- what a top notch group of dedicated people. The Project Lifesaver International group leaves a lasting impression on all who are fortunate to meet them and learn from them. To the many members of Law Enforcement that I had the distinct pleasure to socialize with-- my hats off to all of you!! Many doors of opportunity are opened while chatting in a small group. I meet some very "grand" women and men who save lives everyday. To the helicopter pilots to the instructors to the men who organize the equipment to those that develop special relationships with those that are vulnerable, those that put on that uniform every day and search for our loved ones- thank you for your time, talents, dedication and patience. I find that thank you seems so small with the large scope of what they do everyday. I also am reminded over and over again from them is this.......they ask for nothing in return...a heartfelt thank you means just that- it touches their heart that we are grateful and love them for what they do. With that said-<br />** THANK YOU**<br /><br />To the kind man who followed me outside and shared a special story and gave me 2 law enforcement pins from his county- 1 for Mike and 1 for me. Thank you- I enjoyed your story and Mike loves the pin. <br /><br />To Bob from Florida, you have your hands full, and in the brief time we spent talking, you are the man for the job. I would love to come to Florida and see your team in action. Let's set that up.<br /><br />To the many, many people who stopped to talk, have a book signed or a photo taken. It was my honor, not yours. My web man will be adding some of the photos. My assistant only took a few for me and I know many were taken with people. Feel free to email them, I would love to add them to the website.<br /><br />My website is having another overhaul this fall. I am contacted so often by parents of special needs children about the tracking devices. What states and counties have them, who to talk to... I plan to have a page on my website with as much information that I have and can obtain for them. We will be breaking it down state by state and then the counties. We will add connecting websites, contact names and info. I have so much and got even more in Indianapolis from law enforcement agencies that wish to be added when complete. Please feel free to send me yours also to add. It will take some time to get it all together but we plan to devote much time this fall linking everything up..contact me or my assistant Susan via my website if needed.<br /><br />I wish to say a quick "shout out" to Davey Hamilton from Indianapolis, IN. Davey is a INDY 500 racer that I had the chance to meet and chat with. Please get that book to your people from HP (his sponsor). I think about our chat everyday and am waiting for the phone to ring and open a door to new and exciting things for the autistic community. <br /><br />Mike has had a great summer but is ready for school to begin again. He misses his friends and special teachers after this long break. Ryan our 20 year old has moved to Duluth, MN and will start college in a week and a half. He is living with several other young men in a big house off campus. We look forward to making many trips to see him this year. <br /><br />Time continues to fly by and with that said, I must close this. It is a rare Sunday that we are not running or hosting guests. We live on the water and during the summer most weekends include house guest. We love to have them but it was a perfect time for a weekend alone. Dinner guest shall arrive in a few hours and I have much to do. <br /><br />I thank you all who keep us close to your heart and continue to share your stories with me. <br /><br />All my best to you until we chat again. Sooner then later, I am getting this blog thing down now and Mike shall go back to school and I will have a bit more time to give it the attention that it deserves. <br /><br />JulieJulie Jurgens-Shimekhttp://www.blogger.com/profile/16079760792510831834noreply@blogger.com0tag:blogger.com,1999:blog-4394649094750008891.post-51099472594904158612009-04-30T12:27:00.000-07:002009-04-30T13:11:36.123-07:00Let's Talk Books!!In a bit of a rush today but I feel the need to pass on some information.<br /><br />PLEASE READ BELOW INFORMAION-<br /><br />The majority of books are purchased online these days. I am an avid reader and consumer when it comes to books. My favorite thing to do is go online to major book vendors and look and buy books. <br /><br />I have no problem sharing with you the best way to obtain a copy of your favorite book or new book yet read. <br /><br />First, if you know who the publisher was- check there first. Many sell books directly and at huge savings to you the consumer. No middle man and no addition shipping via vendors. <br /><br />Second, if you can not get a book from the publisher then go to a direct vendor. When I say that I mean such as - Barnes & Noble, Borders Books and my favorite Amazon.com. You will pay what I refer to is a fair price. Ordering online is cheaper then in a store.<br /><br />Third, look and see what incentives the above are offering. As a club member you can get huge savings if you buy a lot of books either at that same time or with in let's say a years time. <br /><br />I bring this subject up because once again I was notified that my books are being sold at ludicrous amounts of money via the Internet. This is a common practice with many book suppliers. This happens to most all books that are new to the market.<br /><br />Let me tell you this, your are putting no extra money in my pocket or my publisher by buying my book at a highly inflated price. Unfortunately, the consumer is the the one who pays the price. <br /><br />I also offer this advise, I know that some of my first book The Color Red are on eBay and apparently signed by me for bid. I can not tell you if they are authentic or not. I have signed so many books- who knows.....? I try if time allows to sign a book with some flair and with a person's name added to it. If you want a book signed, come to a signing- I am happy to do so or at an event I am at.<br /><br />If you want my book do yourself a favor and go to my website- go to my publisher and order a book(s). If not there then Amazon or Barnes & Noble online or in stores. <br /><br />I was sent a note from a friend who found my book(s) for over $70.00 for one of them and it was a paperback, not even a hard cover copy. That is insane and I hate the thought of a parent, teacher or family member with an autistic or special needs child not ordering that book that they may very need the information contained in it because the cost is so high.<br /><br />I also know that several Universities courses in the field of teaching, education, and special education or Masters programs now require my book to read as part of the curriculum. I hate the thought of a college student who already is pumping out outrageous amounts of money for books for their classes possibly without knowing better spending these outrageous amounts of dollars for my book or for that matter other books. Yes, that was officially a run on sentence. I am irritated by this and in a rush.<br /><br />Buy from reputable book stores and online is great. I have never had a problem with my book ordering online at B&N and Amazon. I have always been pleased.<br /><br />I feel fine with the set price for my books at both my publisher and reputable book stores. At best you will save money buying online with my top picks for store what ever the book it is you are ordering.<br /><br />Consider this post a consumer post. Don't pay $70.00 for one of my books or $121.00 for a hardcover copy- I am good but not that good honey!Julie Jurgens-Shimekhttp://www.blogger.com/profile/16079760792510831834noreply@blogger.com0tag:blogger.com,1999:blog-4394649094750008891.post-9999877560562385932009-04-26T09:00:00.000-07:002009-04-26T09:11:55.094-07:00Some pictures from the photo shot for bookhttp://www.slide.com/r/6G8wY83GtD_3DsJB7Y-6_LyVucj9T7tOJulie Jurgens-Shimekhttp://www.blogger.com/profile/16079760792510831834noreply@blogger.comtag:blogger.com,1999:blog-4394649094750008891.post-21187255447257569162009-04-25T07:36:00.000-07:002009-04-25T07:41:18.817-07:00Book party info to come soon- next week. Join me on Twitter or Facebook. Was sent a great link on Facebook from a high school classmate that is geared for Autistics- check it out- It is GREAT!<br /><a href="http://sketchup.google.com/spectrum.html">http://sketchup.google.com/spectrum.html</a><br /><br />It is a Saturday here and Mike is a busy guy- have to run.<br />Check back soon for updates.<br /><br />JulieJulie Jurgens-Shimekhttp://www.blogger.com/profile/16079760792510831834noreply@blogger.com0tag:blogger.com,1999:blog-4394649094750008891.post-71628234029981442792009-04-17T13:55:00.000-07:002009-04-21T11:08:08.208-07:00New Book " Autism is a Four Letter Word-Love" is outI am so excited that my new book is out and available. It is always exciting to see your work <span class="blsp-spelling-corrected" id="SPELLING_ERROR_0">develop</span> to a finished piece.<br /><br /><br /><br />I am receiving many emails with questions on my book PR and when & where I will be.<br /><br /><br /><br />My answer is I am unsure at this time.<br /><br /><br /><br />I had to make a few changes to the planned PR schedule for the moment. Michael does not do well when I am not at home. He does OK with dad when I am away for a short time. Jim however has had his own set of circumstances recently. As we are in Minnesota with the work that Jim does he has been called away at a moments notice to head to North Dakota to help build the levees for the ever flooding ND. Just when I have something on the schedule he gets the call and within less then a half an hour he is gone. At times for a week or longer or a few days. When he leaves we have no answers when he is coming home.<br /><br /><br /><br />With that said, I am taking a step back and giving the flooding situation time to settle and then I will let my PR people get things back on schedule. I know the timing is terrible but what can one do?<br /><br /><br /><br />Yes, I will be doing radio talk shows, press and TV. I will have a launch party I believe in late May and then start doing book signings. Life should settle a bit by then so it can be enjoyed.<br /><br /><br /><br />My website has had a facelift so feel free to snop around a bit and catch up on things. The book is available via my publisher online and at most major book stores online and in stores. It take a bit of time for them to get then and out on shelves. Furthermore, most books are now ordered via the net.<br /><br /><br /><br />You can catch the links on my website to order- <a href="http://www.jjshimek.com/">www.jjshimek.com</a><br /><br />Have to run, Mike soon home from school-<br /><br />All my best- JulieJulie Jurgens-Shimekhttp://www.blogger.com/profile/16079760792510831834noreply@blogger.com0tag:blogger.com,1999:blog-4394649094750008891.post-20761801725973220002008-02-11T10:47:00.000-08:002008-02-11T10:49:50.644-08:00Project Lifesaver Info-February 7th , 2008<br />I am still green to this “blog” concept but love the idea of a place for a recent thought, idea and updates of what is “going on”.<br />My website is currently going through some changes and will soon have much new information and links for upcoming projects. Please give my web people a week to get all of this information up to the site.<br />As to Project Lifesaver in Minnesota- it is time to get involved and help us take our pleas to MN Government. My website will have all the recent information and contact information I hope next week. It is the consensus of those of us heading this that the long haul and the number(s) of people actively involved in this project will make the difference. Check the website at <a href="http://www.jjshimek.com/">www.jjshimek.com</a> for information.<br />I am still working with families on the second book profiling Minnesota families raising Autistic children. I have a long way to go but the project is active. It has somewhat “taken on a life of it’s own” so to say and my involvement with our families is such a gift.<br />I have been approached to do a children’s book on Autism. A book geared to be used in the classroom to explain Autism to non- special needs students who have or will have Autistic children in their classes. I am looking for a talented illustrator to be involved in this project- preferably a person close to or raising an Autistic child. Please contact me via my website if you would like to be considered for this project.<br /><a href="http://www.jjshimek.com/">www.jjshimek.com</a><br /><br />With the changes in the website there will be a “sneak peak” of the novel I am working on. It is my first “non- autistic “ project that is far from complete.<br /><br />APRIL is National Autism Awareness Month- We are currently planning some projects for APRIL - check the website appearance schedule for what I will be doing in April.<br />I am getting more comfortable with the “blog” concept and plan to use it often.<br /><br /><br />Chat to you later,<br />All my best,<br />JulieJulie Jurgens-Shimekhttp://www.blogger.com/profile/16079760792510831834noreply@blogger.com0tag:blogger.com,1999:blog-4394649094750008891.post-19495356575746672012008-01-17T09:25:00.000-08:002008-01-17T10:54:41.268-08:00Teacher's and Educational Staff that Abuse Special Needs Children<span style="font-size:85%;color:#cc0000;">January 17,2008</span><br /><span style="font-size:85%;color:#cc0000;"></span><br /><span style="font-size:85%;color:#cc0000;">The front page of our newspaper has again the headlines of abuse to a Special Needs Child done by a teacher currently under paid leave by abuse allegations for <span class="blsp-spelling-error" id="SPELLING_ERROR_0">tw</span>0 (2) disabled children one Autistic the other not specified as of yet by the press nor the reports.</span><br /><span style="font-size:85%;color:#cc0000;"></span><br /><span style="font-size:85%;color:#cc0000;">The school district next to ours - <span class="blsp-spelling-error" id="SPELLING_ERROR_1">Willmar</span>, MN is under the microscope again. A second lawsuit has been filed against a Special Education Teacher. The allegations are heart wrenching and other teachers and paraprofessionals in the school have also reported this teacher for mistreatment and abuse allegations in the past. I am not going to write a "report" on what all of the allegations are or frankly where I currently stand on the guilt or innocence of the teacher. I have followed countless articles and read all of the reports and lawsuit filings that I can find on the matter. What I found in addition to the shock of the situation is the article comments from the public that seem to more and more blame the parents for having their children with a disability in a public school or that their parenting has lead to these children being abused in school. I will await and allow the legal process to run it's course as that is the right thing to do. This does have a personal touch to our family. Our son has never been a student at this school; but we did look at the school and gave it some consideration when we were looking at open enrollment for Michael. </span><br /><span style="font-size:85%;color:#cc0000;"></span><br /><span style="font-size:85%;color:#cc0000;"> What I will say, as I am saving the situation and details for my next book, along with the photos. We have seen with our own eyes what can happen to your child left in the care of educated professionals. What we have learned is this. School officials and teachers make very poor excuses for the reason why they hurt our disabled children. The scrambling act that follows this is just stomach turning for us. When a non verbal Autistic child comes home with bruises, scratches and abrasions and you find out it was a trained professional that did this to a 5 year old disabled child, what ever the "reason or excuse" to justify their acts is really pointless to we parents. A child who loved school, now refuses to go. Aggressive behavior done to them is now taught to them as a way to protect themselves when teachers try to get near them and the domino effect now happens. A child who was happy and playful now is angry and aggressive with you the parent when you try to send them to school. A peaceful home full of love and laughter is now a war zone. As if these children do not have enough to overcome and contend with, now people are abusing them and the world just watches on and makes excuses. For many they see our children with a Special Need as damaged goods, that are not really that good after all, just a burden on society. As a parent with a 6 year old Autistic child I know first hand about contending with life's unfair game that it can play and what stress is and what the world of day to day challenges are. I am so tired of hearing about Special Education staff burnout and that is what is causing this to happen and that those doing this are really not to blame, they are just stressed out by their jobs. My answer to that is this. If I as a parents left bruises on my 5 year old Autistic son, on his face, wrists, ankles, back and legs. Scratch marks on various parts of his body, and abrasions and scrapes on him from pinning him this is what I know. </span><br /><span style="font-size:85%;color:#cc0000;"></span><br /><span style="font-size:85%;color:#cc0000;">#1. I would be turned in to the proper authorities right away</span><br /><span style="font-size:85%;color:#cc0000;">#2. I would be arrested</span><br /><span style="font-size:85%;color:#cc0000;">#3. Our son would be removed from our home and a safe place provided</span><br /><span style="font-size:85%;color:#cc0000;">#4. There would be a public out cry against me</span><br /><span style="font-size:85%;color:#cc0000;">#5. The public would feel compassion for my Special Needs Child as this was done by a horrible parent</span><br /><span style="font-size:85%;color:#cc0000;">#6. I would be chastised and punished in the <span class="blsp-spelling-error" id="SPELLING_ERROR_2">public's</span> eye and by the legal system</span><br /><span style="font-size:85%;color:#cc0000;">#7. A complete investigation would be done and would not be allowed to drag on for many months or years.</span><br /><span style="font-size:85%;color:#cc0000;">#8. There would be no union for me to hide behind and lost wages and benefits continued to be provided months and even a year (s) going by still receiving these benefits.</span><br /><span style="font-size:85%;color:#cc0000;"># 9. My telling the public that I was stressed out and will not do this again would not mean that "all is well" and forgiven send her son home today and only if enough people complain will we return ever again to check in on your son</span><br /><span style="font-size:85%;color:#cc0000;">#10. I would not have the backing of the "brotherhood & sisterhood" of other parents making and supporting foolish excuses made to place the real blame on my son at 6 years of age instead of me the parent.</span><br /><span style="font-size:85%;color:#cc0000;">#11. I would not have a multi million dollar "empire" in a parental "union" backing me up and fighting for me to have my son returned and life to just go on as if it never happened.</span><br /><span style="font-size:85%;color:#cc0000;">#12. The words miscommunication and misunderstanding would be <span class="blsp-spelling-corrected" id="SPELLING_ERROR_3">interpreted</span> for what they really mean </span><br /><span style="font-size:85%;color:#cc0000;">( B.S) and not as though they were some secret society Harvard Law words that well educated people use in place of "true and meaningful words" to cover for a lie and think that people really buy those words. * When I hear those words used by <span class="blsp-spelling-corrected" id="SPELLING_ERROR_4">intelligent</span> people.....my mind jumps right to the lie I am being told.</span><br /><br /><span style="font-size:85%;color:#cc0000;">This is why I am so bothered......why do we as a society except it from a teacher and make excuses?</span><br /><span style="font-size:85%;color:#cc0000;"></span><br /><span style="font-size:85%;color:#cc0000;">Here is a link to the article that also provides a complete link to all of the past information and legal in the press</span><br /><br /><br /><a href="http://www.wctrib.com/articles/index.cfm?id=29744&section=homepage">http://www.wctrib.com/articles/index.cfm?id=29744&section=homepage</a>Julie Jurgens-Shimekhttp://www.blogger.com/profile/16079760792510831834noreply@blogger.com0tag:blogger.com,1999:blog-4394649094750008891.post-59361977156472894602008-01-16T11:53:00.000-08:002008-01-16T11:54:37.959-08:00First BlogBLOG-<br /><br />1/16/08<br />Greetings Friend,<br />This is my first time ever doing a blog and I am not sure how often I will post one to be honest. This is a wonderful way to reach so many people searching for answers on what I am doing. The next book. The bill for funding in MN for the Project Lifesaver Tracking System. The first book “ The Color Red”. How our family and Michael are doing. It is my goal to address all of these here.<br />Here goes……..<br />The next book- I am working on the next book profiling Minnesota families raising Autistic children. I have fantastic families involved in the project- however it is still in it’s early phase. Much has happened to say the least since I started the project in March of 2007. This has become a much larger project then I could have ever imagined, let alone several other projects in addition that I have taken on. It is all good and I am very pleased. I just am excepting the fact that this will be at best twice the amount of research, work and time then I had originally thought. I have had an overwhelming amount of support where the new book is concerned and exceptional families involved in the project. I have not had the opportunity to meet and begin the process with several of the families yet, other then in emails and phone chats. What I have found is that with each family the dynamics are very unique and that the best way for me to “do my best” is to spend time and work on their families chapter from start to finish first before getting involved with another family. In addition to keeping everything on tract it has allowed me the chance to really find the special niche` each families chapter has to offer. It takes time to do that. I am very excited and honored at the generosity that these families allow me to have with them. Many thought my first book “The Color Red” was a gateway of information on Autism, the next will truly tell a story of families raising children with Autism. I have been asked many times if I am stressed by this process. My answer is “yes” and then some. As a parent of an Autistic child, I know the real meaning of the word overwhelmed. This is the reason for my taking this a bit slower then planned and only working with one family at a time. I am learning so much and am so excited to share it with everyone. Please be patient with me to get to your family, you are on my mind often and our time together will be soon I hope. Please feel free to email me at anytime to have a chat or a check in. I love to hear from “my book families”.<br /><br /><br /><br /><br /><br />THE BILL-<br />Where do I begin when discussing the bill. It is so complicated I hope I can explain where we are at, and what we are doing ( without getting to heavy into politics).<br />I will start out by stating this, when you have a good idea and open your mouth, be prepared to back it up and roll up your sleeves. I say that with a bit of a giggle as I suspected that I would be involved with the project when I started however I never thought I would be the “ring leader” and “writer” of the bill.<br />Here is the skinny on the bill-<br />Our county - Kandiyohi County is one of four (4) counties in Minnesota that offers a “tracking devise” that our Autistic son wears. It is a beacon devise that he wears on his ankle. It is about the size of a small watch. He has had this now for over three (3) years. It is provided free of charge by our local sheriff’s office that has a “task force” team that manages them each month with our family. This device is identical to the tracking devices that are used by the DNR to track animal in the wild. It offers a beacon sound in tracking up to 15 miles and under water up to 10 feet should Michael ever become lost. I have watched it ‘live” in action on a track and it is fantastic and lifesaving to say the very least. Michael was not a fan of this devise when he first got it, we hung tough as we knew no matter what we want him found if he should ever become lost. If you have read my first book, that statement will make more sense. It now is a part of him and he is use to it, and he can not take it off. With the recent “rash” of Autistic children becoming lost on Minnesota and Wisconsin with tragic endings this past spring I needed to do something. I was currently promoting the devises and talking about the need for funding when it all came full circle for me. Here is the timeline-<br />June 20, 2007 -<br />I was a guest on the WCCO radio talk show The Don Shelby Show in MPLS, MN. Don is a wonderful man who also saw the need to discuss the tracking devises in MN and the funding that is needed. While on his show, we discussed the recent tragedies of Autistic children wandering/sneaking out of their homes and drowning. It was a time for good discussion and a brief chat on the upcoming book.<br />June 21, 2007-<br />An article on Project Lifesaver’s tracking devise and our Michael wearing one was in the West Central Tribune, it was a great article that focused on the need for all those vulnerable to have this lifesaving technology available not just a select few. It also focused on the finance part of this devise and the “ how many children have to die before something it done” theory. Let’s keep in mind that people with Dementia and Alzheimer’s also wear these devises. It is a win- win for everyone once they are available to all in need statewide.<br />June 21, 2007-<br />10 AM- I was a guest on the TV talk show Showcase Minnesota discussing the book “The Color Red”, the upcoming book but focusing our time on the Project Lifesaver tracking devises and the dire need all MN families with vulnerable loved one’s are in to receive this. I also focused on the “looming tragedy” just waiting to happen to an Autistic child in MN.<br />After the show ended, I headed home to New London, MN to be there in time for Michael to return home from school. I had shut my mobile phone off during the drive as Susan my PR gal was with me and we wanted to take the time to discuss the past few days of work and go over some things and when my phone is on…it is ringing.<br />I arrived home around 1:30 PM to my house phone ringing. It was a producer from one of the TV news stations. What he told me, left me unable to talk. While I was “on air” doing the talk show this morning- only a few miles away from the NBC studio in Minneapolis, MN - Blaine, MN . Kaylie Dickerson- 5 years old and Autistic went missing and is believed to have wandered away from her families home. Police, Sheriff’s Dept, Rescue Diver’s and search teams along with K9 dogs, neighbors and family were franticly looking for her.<br />Their question was - Could I come in studio for the 5 PM news and discuss the tracking devises live? Many thoughts raced through my mind during that brief phone conversation.<br />I realized that with a 3 hour drive at best, not even considering traffic into the cities, I would not make the news, get Michael covered let alone do some prep for the discussion.<br />I asked them to keep me posted and I would do what I could from home for the time being. I sat diligently watching the news and my laptop for updates on the search.<br />At around 4 PM I received the call that Kaylie’s body had been recovered from a retention pond approximately 300 feet from her home in a neighbors back yard. Again, I was left with little to say over the phone as I was just numb. I sat with Michael in my lap for hours that night. I received a call that Anchorman Don Shelby was doing a segment of his “In the Know” on the WCCO 10 PM News to talk about the tracking devices.<br />Here is the link-<br /><a href="http://wcco.com/video/?id=28262@wcco.dayport.com">http://wcco.com/video/?id=28262@wcco.dayport.com</a><br /><br /><br />My 18 year old son said to me after the news that night….” what are you going to do about this mom”? I was unable to sleep for many days after this tragedy. Susan and I attended Kaylie’s funeral days later. At this point it is still to personal for me to talk about or discuss and share at this time, maybe later….<br />After Kaylie’s funeral I decided that the only way things are going to change is to roll my sleeves up and take the leap. In a summary this is what has been done thus far. I have been campaigning the idea to anyone willing to listen. A video of a “mock” search using our Michael accompanied with his dad done by the Kandiyohi County Sheriff’s Office that was filmed is currently done and in the editing process and will be available to the public, communities, Law Enforcement and most important to government officials. It should be done and available in the next month, and a real eye opener. I am excited as this was truly a film of a realistic search that is more then impressive and speaks volumes. It shows why vulnerable people need this to save theirs lives, and the dedication of Law Enforcement, their talents and skill to get the job done.<br />I also learned this most important thing. Have we given any thought to those that look for these children and recover their lifeless bodies? Imagine what is does to them for the rest of their life? It is heartbreaking to them, when they know what they need to bring vulnerable people home alive and can not get the help, support and funding for the equipment to do so. In my countless discussion with Law Enforcement officials and officers state wide I constantly hear the stories of how many tragedies could have been avoided if this “lifesaving technology” was made available to those in need and to the people/departments we call upon to find our vulnerable loved ones.<br />I have been “honing” my skills and learning the bill writing process and the trenches of government. It amazes me how anything get’s done with the number of hoops one must jump through let alone the “dances” that seem to need to be done to make any headway. It most often seems I take one step forward and two back. I have been in contact with several Senators and Representative’s. My last answer was that funding would “probably” come from the Department of Public Safety and their budget is already done and approved at this time for this session/year. That means that at the earliest that this bill can go anywhere is in 2009 ( I was told this in 2007). The figures that I have been able to come up with is this…we will need $1.37 Million to get trackers, training and equipment for the people in need in the State of Minnesota to cover each county in MN. Once the initial costs are done, each county would need to maintain the program themselves. Our county maintains their’s by using funds from the Driver’s Awareness Program. These figures were a rough number for 2008. I know the amount sounds high. I ask myself this….what is your vulnerable loved ones life worth? With all of the “frivolous” spending that is done in Minnesota with our tax dollars can’t we find a way to save lives?<br />In this process I have also made this decision. At some point in the future I plan to run for office either in the Senate or as a Representative. I have learned much, and there is much to be done. Again, roll up your sleeves and jump into the trenches. One thing at a time however. This bill remains a focus for me. I plan to do all I can and encourage anyone interested to contact me and jump on board. I am not expecting this to happen over night and it may take us years to do. Standing strong with endurance is what I am counting on.<br />*Keep an eye on my website, it will soon be under construction and have more information and a section just for the bill and what you can do to help.<br />I have to stop now, life is happening all around me today. Mike is at school and I have to utilize that time as much as possible.<br />More later…<br />JulieJulie Jurgens-Shimekhttp://www.blogger.com/profile/16079760792510831834noreply@blogger.com0